Source
of issue |
Issue |
Task Forces |
| |
|
1 |
2 |
3 |
4 |
5 |
CONSUMER VIEWS |
1.
Lack of knowledge regarding resources |
u |
u |
u |
u |
u |
2.
Doctor is seen as coordinator of care |
u |
u |
u |
|
|
Interviews with Dying Persons and Families |
3.
Health care professionals are not adequately prepared to deal with issues around death and
dying. |
|
u |
u |
|
|
4.
The system increases streee/distress of dying individuals and their families. |
|
u |
u |
|
|
5.
Individuals fear becoming a physical and financial burden to their families. |
u |
|
|
u |
|
6.
Loss of control |
u |
|
|
|
|
7.
Isolation |
u |
|
|
|
u |
8.
Support Systems |
u |
|
|
|
u |
9.
Lack of ability to talk about death and dying. |
u |
u |
u |
u |
u |
10.
Quality of Life |
u |
|
|
|
u |
11.
There is a need for empowerment and advocacy |
u |
|
|
|
u |
| |
|
1 |
2 |
3 |
4 |
5 |
CONSUMER VIEWS |
1.
The relationship between families, loved ones, physicians, and other health care and
community providers. |
u |
u |
u |
|
|
2.
Lack of knowledge and the need for more information conveyed in an understandable manner |
u |
u |
u |
|
|
Community Dialogues |
3.
Cultural and personal barriers |
u |
u |
u |
|
u |
4.
Information and access to protrams in the community |
|
|
|
|
u |
5.
Fear of the dying process |
u |
|
|
|
u |
6.
Lack of planning |
u |
|
|
|
|
7.
The system itself. |
u |
u |
u |
u |
|
| |
|
1 |
2 |
3 |
4 |
5 |
CONSUMER VIEWS |
1.
Control over treatments; pain management |
u |
u |
u |
u |
|
2.
Communicate openly and trustingly about health care/patient and family wishes |
u |
u |
u |
|
|
Area-Wide Dialogues |
3.
Professional training |
|
u |
u |
|
|
4.
Increase ability of schools, work, church groups, and community groups to actively
particpate |
|
|
|
|
u |
5.
Insurance coverage and access |
u |
|
|
u |
|
6.
Isolation |
u |
|
|
|
u |
PROVIDER VIEWS |
1.
Empowerment |
u |
|
u |
|
|
2.
Communication, including cultural issues |
u |
u |
u |
|
u |
Focus Groups |
3.
Cultural diversity |
u |
u |
u |
|
u |
4.
Professional education |
|
u |
u |
|
|
5.
Public education |
u |
|
|
|
u |
6.
Coordination of community resources |
|
|
|
|
u |
7.
Turf Issues |
|
u |
u |
|
u |
8.
Financial barriers – insurance coverage and cost of care |
|
|
|
|
u |
9.
Social isolation |
u |
|
|
|
u |
10.
Grief and bereavement |
u |
|
|
|
u |
| |
|
1 |
2 |
3 |
4 |
5 |
PROVIDER VIEWS |
1.
System problems: integration and continuity; coordination of resources; access to
services; lack of joint planning |
u |
u |
u |
u |
u |
2.
Strengthening referral systems: Lack of knowledge and information |
u |
u |
u |
|
u |
Organizational Analyses |
3.
Educational issues regarding providers and consumers |
u |
u |
u |
u |
u |
4.
Financial impediments |
|
|
|
u |
|